Caregiver Resources
Welcome to our Caregiver Resources section. We have compiled a list of internet resources to help you in caring for your loved one. These resources link out to other websites containing information that may be helpful to you and your loved one. Remember, you can always ask your care team to answer any questions you may have about care options, available resources, and questions you may have about specific illnesses.
Remember, we’re here for you
- Resources for Cancer Patients and Caregivers
American Cancer Society
(888) 227-5445
Hospice Care | About Hospice Care | American Cancer Society
National Cancer Institute
Advice for coping with being a cancer caregiver.
Caregivers of Cancer Patients – NCI - Resources for Dementia Patients and Caregivers
Aging With Dignity
Provides you with practical information, advice and tools you need to ensure that your wishes and those of your loved ones will be respected.
www.agingwithdignity.org
The Alzheimer’s Association
This association, a world leader in Alzheimer research and support, is dedicated to finding prevention methods, treatments and an eventual cure for Alzheimer’s.
Alzheimer’s & Dementia Daily Care | Alzheimer’s Association - Resources for Cardiac Patients and Caregivers
Marie Curie
Information about End Stage Cardiac and symptom management at EOL
Caring for someone with heart failure at the end of life (mariecurie.org.uk) - Resources for Pulmonary Patients and Caregivers
Action for Pulmonary Fibrosis
Information about End Stage Pulmonary Fibrosis for patients and Caregivers.
End of life with pulmonary fibrosis | Action for Pulmonary Fibrosis (actionpf.org)
American Association for Respiratory Care
End of Life discussions about COPD
Big Ideas Theater: End of Life Discussions from the RT Perspective – AARC
COPD Foundation
Information for the COPD caregiver
The COPD Caregiver | COPD Foundation - Resources for Liver Patients and Caregivers
American Liver Foundation
American Liver Foundation provides current news and information on a variety of liver related topics helping patients, friends and families affected by liver disease.
Caregiver Resources – American Liver Foundation - Resources for Renal Patients and Caregivers
National Kidney Foundation
Provides resources for patients and caregivers and information on end stage Kidney disease
How Does Palliative Care Improve the Quality of Life for Kidney Patients? | National Kidney Foundation - Resources for HIV Patients and Caregivers
HIV.gov
Provides resources to End Stage HIV (AIDS) patients and caregivers
Activities Combating HIV Stigma and Discrimination - Resources for Severe Protein Calorie Malnutrition Patients and Caregivers
Acute.org
Provides information and resources for Non eating disorder Severe Calorie Malnutrition patients and caregivers.
Severe Malnutrition: Facts and Symptoms | ACUTE - Resources for Stroke or Coma Patients and Caregivers
American Stroke Association
Caregiver resources for End Stage Stroke patients
Family Caregivers | American Stroke Association - Resources for ALS or MS Patients and Caregivers
ALS Association
Provides resources regarding ALS – amyotrophic lateral sclerosis for patients and caregivers.
Find Local Support for ALS | The ALS Association
National MS Society
Provides resources for patients and caregivers affected by MS
Resources & Support | National Multiple Sclerosis Society (nationalmssociety.org) - Resources for Parkinson’s Patients and Caregivers
Parkinson’s Foundation
Provides resources and information about Parkinson’s Disease for patients and caregivers.
- General Resources for Patients and Caregivers
AARP
Provides resources and information for caregivers.
www.aarp.org/caregiving
CaringBridge
Caring Bridge websites feature a patient care journal to update loved ones, guestbook and photogallery.
www.caringbridge.org
Caring Connections
Provides free resources and information to help people make decisions about end-of-life care and services. This website is an initiative of the National Hospice and Palliative Care Organization.
www.caringinfo.org
Family Caregiver Alliance
Provides services to family caregivers of adults with physical and cognitive impairments, such as Parkinson’s, stroke, Alzheimer’s and other types of dementia
www.caregiver.org
National Alliance for Caregiving
Items include books, videos, websites, magazines, fact sheets and other resources addressing the range of issues and questions faced by family caregivers.
www.caregiving.org
National Caregivers Library
Provides an extensive library for caregivers with articles, forms, and checklists.
www.caregiverslibrary.org
National Family Caregivers Association
Contains information and resources to educate, support and empower people who are caregivers. Connect with other caregivers through message boards, blogs and an event calendar.
www.nfcacares.org - Caregiving Quick References
A Caregiver’s Bill of Rights
https://www.caregiver.org/resource/caregivers-bill-rights/
Taking Care of Yourself
https://www.caregiver.org/resource/guide-taking-care-yourself/
The Emotional Side of Caregiving
https://www.caregiver.org/resource/emotional-side-caregiving/
Holding On and Letting Go
Ambiguous Loss
When Caregiving Ends
https://www.caregiver.org/resource/when-caregiving-ends/
Depression and Caregiving
https://www.caregiver.org/resource/depression-and-caregiving/
Spirituality and Grief
https://whatsyourgrief.com/faith-spirituality-and-grief/
The Relationship Between Grief and Belief